I went for my four month check-up with my oncologist and I was given the results of my bone scan. I was told that I have bone loss in my pelvis/hips and that I am at a moderate risk of a bone fracture. The bone loss is a result of the chemotherapy and the anti-hormone treatment that I currently take. The oncologist said that he was not happy with this result and suggested that I begin injections of Prolia (generic name denosumab). His office was able to obtain the pre-authorization for the injection through our insurance I went back two weeks ago for the injection. My mom went with me for moral support. After the nurse gave me the injection (which burned!!) I had to sit while being observed for 10 minutes followed by an additional 20 minutes in the waiting room to make sure I did not have any adverse reactions to the drug. Thankfully, I had no reactions at the time and was able to go back to work.
For the following two days I experienced some flu-like symptoms such as a headache and muscle weakness and muscle aches. After that I felt pretty good and then about a week ago I started having increased back pain and burning pain and weakness in my arms and hands, and a general feeling of weakness overall.. Apparently this is a possible side affect. Compared to the list of possible side effects from this drug I am doing really well. Just reading the information sheet that the doctors office went over with me before giving me the injection was frightening.
Sometimes I seriously feel like cancer is the gift that just keeps giving. I feel discouraged at times, and angry at times… but then I have to remind myself that I am alive. I have to be positive and look on the bright side of things. There are so many breast cancer sisters who have passed away and I know in my heart that they would give anything to be alive and with their family “suffering” with these little side effects that make me cry sometimes. It is times when I think of them that makes me straighten up and just be thankful and stop my whining.
On a positive note…I have been named patient representative for our cancer care center. There are two patient representatives, me and a gentleman who battled gastric cancer. We are leaders of the new survivors group at the hospital. We had our first meeting on the 7th of April and I believe that it went really well. We meet again on April 21st and I hope that more people attend and that we are able to reach a wide range of cancer survivors.